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Privacy Policy ⋆ STOP SMA

Personal data processing policy


1. General Provisions

This personal data processing policy has been drawn up in accordance with the requirements of the Federal Law dated 27.07.2006. № 152-ФЗ "On personal data" (Further – Personal data law) and determines the procedure for processing personal data and measures to ensure the security of personal data, undertaken by Shirokov Alexander Eduardovich (hereinafter - Operator).
1.1. The operator sets as his most important goal and condition for the implementation of his activities the observance of human and civil rights and freedoms when processing his personal data, including protection of privacy rights, personal and family secrets.
1.2. This Operator's policy regarding the processing of personal data (hereinafter - Politics) applies to all information, which the Operator can receive about visitors to the website https://stop-sma.ru/.


2. Basic concepts, used in the Policy

2.1. Automated processing of personal data - processing of personal data using computer technology.
2.2. Blocking of personal data - temporary termination of the processing of personal data (except in cases, if processing is necessary to clarify personal data).
2.3. Website - a set of graphic and information materials, as well as computer programs and databases, ensuring their availability on the Internet at the network address https://stop-sma.ru/.
2.4. Personal data information system - a set of personal data contained in databases, and providing their processing of information technologies and technical means.
2.5. Anonymization of personal data - actions, as a result of which it is impossible to determine, without the use of additional information, the belonging of personal data to a specific User or other subject of personal data.
2.6. Personal data processing - any action (operation) or a set of actions (operations), committed with the use of automation tools or without the use of such tools with personal data, including collection, recording, systematization, accumulation, storage, clarification (update, the change), retrieval, usage, transmission (Spread, granting, access), depersonalization, blocking, deletion, destruction of personal data.
2.7. Operator - government agency, municipal authority, legal or natural person, independently or jointly with other persons organizing and (or) processing personal data, as well as determining the purposes of personal data processing, composition of personal data, to be processed, actions (operations), committed with personal data.
2.8. Personal data - any information, relating directly or indirectly to a specific or identifiable User of the https website://stop-sma.ru/.
2.9. Personal Information, allowed by the subject of personal data for distribution, – Personal Information, access of an unlimited number of persons to whom is provided by the subject of personal data by giving consent to the processing of personal data, allowed by the subject of personal data for distribution in the manner, provided for by the Law on Personal Data (Further – Personal Information, allowed for distribution).
2.10. User - any visitor to the https website://stop-sma.ru/.
2.11. Provision of personal data - actions, aimed at disclosing personal data to a specific person or a specific circle of persons.
2.12. Dissemination of personal data - any actions, aimed at disclosing personal data to an indefinite circle of persons (transfer of personal data) or to get acquainted with the personal data of an unlimited number of persons, including the disclosure of personal data in the media, placement in information and telecommunication networks or providing access to personal data in any other way.
2.13. Cross-border transfer of personal data - transfer of personal data to the territory of a foreign state to the authority of a foreign state, foreign individual or foreign legal entity.
2.14. Destruction of personal data - any actions, as a result of which personal data is destroyed irrevocably with the impossibility of further restoring the content of personal data in the personal data information system, and (or) material carriers of personal data are destroyed.


3. Basic rights and obligations of the Operator

3.1. The operator has the right:
- receive reliable information and / or documents from the subject of personal data, containing personal data;
- if the subject of personal data revokes consent to the processing of personal data, the Operator has the right to continue processing personal data without the consent of the subject of personal data if there are grounds, specified in the Personal Data Law;
- independently determine the composition and list of measures, necessary and sufficient to ensure the fulfillment of duties, provided for by the Law on Personal Data and regulatory legal acts adopted in accordance with it, unless otherwise provided by the Law on Personal Data or other federal laws.
3.2. The operator is obliged:
- provide information to the subject of personal data at his request, concerning the processing of his personal data;
- organize the processing of personal data in order, established by the current legislation of the Russian Federation;
- respond to requests and inquiries from subjects of personal data and their legal representatives in accordance with the requirements of the Law on Personal Data;
- notify the authorized body for the protection of the rights of subjects of personal data at the request of this body the necessary information within 30 days from the date of receipt of such a request;
- publish or otherwise provide unrestricted access to this Policy regarding the processing of personal data;
- take legal, organizational and technical measures to protect personal data from unauthorized or accidental access to them, destruction, changes, blocking, copying, providing, dissemination of personal data, as well as from other illegal actions in relation to personal data;
- stop transmission (Spread, granting, access) personal data, stop processing and destroy personal data in the manner and cases, provided by the Law on Personal Data;
- perform other duties, provided for by the Law on Personal Data.


4. Basic rights and obligations of personal data subjects

4.1. Personal data subjects have the right:
- get information, concerning the processing of his personal data, except in cases, stipulated by federal laws. Information is provided to the subject of personal data by the Operator in an accessible form, and they should not contain personal data, related to other subjects of personal data, except in cases, when there is a legal basis for the disclosure of such personal data. The list of information and the procedure for obtaining it is established by the Law on Personal Data;
- require the operator to clarify his personal data, their blocking or destruction in case, if the personal data is incomplete, obsolete, imprecise, illegally obtained or are not necessary for the stated purpose of processing, as well as take measures provided by law to protect their rights;
- put forward a condition of prior consent when processing personal data in order to promote goods on the market, works and services;
- to withdraw consent to the processing of personal data;
- appeal to the authorized body for the protection of the rights of subjects of personal data or in court the illegal actions or inaction of the Operator when processing his personal data;
- to exercise other rights, stipulated by the legislation of the Russian Federation.
4.2. Personal data subjects are obliged:
- provide the Operator with reliable data about yourself;
- inform the Operator about the clarification (renewal, change) your personal data.
4.3. Faces, have transmitted false information about themselves to the Operator, or information about another subject of personal data without the consent of the latter, are liable in accordance with the legislation of the Russian Federation.


5. The operator can process the following personal data of the User

5.1. Surname, name, patronymic.
5.2. Email address.
5.3. Phone numbers.
5.4. Year, month, Date and place of birth.
5.5. Photo.
5.6. Also, the site collects and processes anonymized data about visitors (including. cookies) using internet statistics services (Yandex Metrica and Google Analytics and others).
5.7. The above data hereinafter referred to as the Policy are united by the general concept of Personal data..
5.8. Processing of special categories of personal data, concerning racial, nationality, political views, religious or philosophical beliefs, intimate life, The operator does not carry out.
5.9. Personal data processing, allowed for distribution, from among special categories of personal data, specified in h. 1 Art. 10 Personal Data Law, allowed, if the prohibitions and conditions are met, stipulated by Art. 10.1 Personal Data Law.
5.10. User's consent to the processing of personal data, allowed for distribution, is drawn up separately from other consents to the processing of his personal data. In this case, the conditions, foreseen, in particular, Art. 10.1 Personal Data Law. Requirements for the content of such consent are established by the authorized body for the protection of the rights of subjects of personal data.
5.10.1 Consent to the processing of personal data, allowed for distribution, The User provides the Operator directly.
5.10.2 The Operator is obliged, no later than three working days from the moment of receipt of the specified consent of the User, to publish information on the processing conditions, on the existence of prohibitions and conditions for the processing of personal data by an unlimited number of persons, allowed for distribution.
5.10.3 Broadcast (Spread, granting, access) personal data, allowed by the subject of personal data for dissemination, must be terminated at any time at the request of the subject of personal data. This requirement must include the surname, name, patronymic (in the presence of), contact information (phone number, email or postal address) personal data subject, as well as a list of personal data, whose processing is to be terminated. The personal data specified in this requirement can only be processed by the Operator, to whom it is directed.
5.10.4 Consent to the processing of personal data, allowed for distribution, ceases to be valid from the moment the Operator receives the request, specified in p. 5.10.3 of this Policy regarding the processing of personal data.


6. Principles of processing personal data

6.1. The processing of personal data is carried out on a legal and fair basis.
6.2. The processing of personal data is limited to the achievement of specific, predetermined and legitimate goals. Processing of personal data is not allowed, incompatible with the purposes of collecting personal data.
6.3. Databases are not merged, containing personal data, the processing of which is carried out for the purpose, incompatible.
6.4. Only personal data is processed, that meet the purposes of their processing.
6.5. The content and volume of processed personal data correspond to the stated purposes of processing. The redundancy of the processed personal data in relation to the stated purposes of their processing is not allowed.
6.6. When processing personal data, the accuracy of personal data is ensured, their sufficiency, and, if necessary, relevance in relation to the purposes of personal data processing. The operator takes the necessary measures and / or ensures their adoption to delete or clarify incomplete or inaccurate data.
6.7. The storage of personal data is carried out in the form, allowing you to identify the subject of personal data, no longer, what is required by the purpose of processing personal data, if the storage period for personal data is not established by federal law, contract, side of which, beneficiary or guarantor of which the subject of personal data is. The processed personal data is destroyed or depersonalized upon achievement of the processing goals or in case of loss of the need to achieve these goals, unless otherwise provided by federal law.


7. Purposes of processing personal data

7.1. Purpose of processing the User's personal data:
- providing the User with access to services, information and / or materials, contained on the https website://stop-sma.ru/;
- providing an indefinite circle of people with information about the fees for the drug Zolgensma, namely – data of children, parents, volunteers.
7.2. Also, the Operator has the right to send the User notifications about new products and services., special offers and various events. The user can always refuse to receive informational messages, by sending the Operator a letter to the email address mail@madnes.ru with the note "Refusal of notifications about new products and services and special offers".
7.3. Anonymized User data, collected using internet statistics services, serve to collect information about the actions of Users on the site, improving the quality of the site and its content.


8. Legal basis for the processing of personal data

8.1. The legal grounds for the processing of personal data by the Operator are:
- The federal law “About information, information technology and information protection” from 27.07.2006 N 149-ФЗ;
- federal laws, other regulatory legal acts in the field of personal data protection;
- the consent of the Users to the processing of their personal data, for the processing of personal data, allowed for distribution.
8.2. The Operator processes the User's personal data only if it is filled in and / or sent by the User independently through special forms, located on the https site://stop-sma.ru/ or sent to the Operator via e-mail. By filling out the appropriate forms and / or sending your personal data to the Operator, The user agrees with this Policy.
8.3. The Operator processes anonymized data about the User in the event, if it is allowed in the User's browser settings (cookies and JavaScript enabled).
8.4. The subject of personal data independently decides on the provision of his personal data and gives his consent freely, by their own will and in their interest.


9. Personal data processing conditions

9.1. The processing of personal data is carried out with the consent of the subject of personal data to the processing of his personal data.
9.2. The processing of personal data is necessary to achieve the goals, stipulated by an international treaty of the Russian Federation or by law, to carry out the functions assigned by the legislation of the Russian Federation to the operator, powers and responsibilities.
9.3. The processing of personal data is necessary for the administration of justice, execution of a judicial act, act of another body or official, subject to execution in accordance with the legislation of the Russian Federation on enforcement proceedings.
9.4. The processing of personal data is necessary for the execution of the contract, whose party or beneficiary or guarantor of which the subject of personal data is, as well as to conclude an agreement on the initiative of the subject of personal data or an agreement, according to which the subject of personal data will be the beneficiary or surety.
9.5. The processing of personal data is necessary to exercise the rights and legitimate interests of the operator or third parties, or to achieve socially significant goals, provided, that this does not violate the rights and freedoms of the subject of personal data.
9.6. Processing of personal data, access of an unlimited number of persons to whom is provided by the subject of personal data or at his request (hereinafter - publicly available personal data).
9.7. Processing of personal data, subject to publication or mandatory disclosure in accordance with federal law.


10. Collection procedure, storage, transfer and other types of processing of personal data

Personal data security, which are processed by the Operator, ensured through the implementation of legal, organizational and technical measures, necessary to fully comply with the requirements of the current legislation in the field of personal data protection.
10.1. The operator ensures the safety of personal data and takes all possible measures, excluding access to personal data of unauthorized persons.
10.2. User's personal data never, under no circumstances will be transferred to third parties, except in cases, related to the implementation of the current legislation or in the case, if the subject of personal data has given consent to the Operator to transfer data to a third party to fulfill obligations under a civil law contract.
10.3. In case of revealing inaccuracies in personal data, The user can update them on his own, by sending a notification to the Operator to the Operator's e-mail address mail@madnes.ru marked "Updating personal data".
10.4. The period for processing personal data is determined by the achievement of goals, for which personal data was collected, unless another period is provided for by the contract or current legislation.
The user can revoke his consent to the processing of personal data at any time., by sending a notification to the Operator by e-mail to the Operator's email address mail@madnes.ru marked "Withdrawal of consent to the processing of personal data".
10.5. All information, which is collected by third-party services, including payment systems, communications and other service providers, stored and processed by specified persons (Operators) in accordance with their User Agreement and Privacy Policy. The subject of personal data and / or the User is obliged to independently familiarize himself with the specified documents in a timely manner. The operator is not responsible for the actions of third parties, including the service providers specified in this clause.
10.6. Prohibitions on transfer established by the personal data subject (other than providing access), as well as the processing or processing conditions (other than getting access) personal data, allowed for distribution, do not apply in cases of personal data processing in state, public and other public interests, defined by the legislation of the Russian Federation.
10.7. The operator, when processing personal data, ensures the confidentiality of personal data.
10.8. The operator stores personal data in the form, allowing you to identify the subject of personal data, no longer, what is required by the purpose of processing personal data, if the storage period for personal data is not established by federal law, contract, side of which, beneficiary or guarantor of which the subject of personal data is.
10.9. A condition for terminating the processing of personal data may be the achievement of the goals of processing personal data., expiration of the consent of the subject of personal data or withdrawal of consent by the subject of personal data, as well as identification of illegal processing of personal data.


11. Checklist, produced by the Operator with the received personal data

11.1. The operator collects, recording, systematization, accumulation, storage, clarification (update, the change), retrieval, usage, transmission (Spread, granting, access), depersonalization, blocking, deletion and destruction of personal data.
11.2. The operator carries out automated processing of personal data with the receipt and / or transmission of the information received via information and telecommunication networks or without it.


12. Cross-border transfer of personal data

12.1. Before starting the cross-border transfer of personal data, the operator is obliged to make sure that, that a foreign country, to the territory of which it is supposed to transfer personal data, reliable protection of the rights of subjects of personal data is provided.
12.2. Cross-border transfer of personal data on the territory of foreign states, not meeting the above requirements, can be carried out only if there is a written consent of the subject of personal data for the cross-border transfer of his personal data and / or execution of the contract, party to which the subject of personal data is.


13. Confidentiality of personal data

Operator and other persons, who have gained access to personal data, are obliged not to disclose to third parties and not to distribute personal data without the consent of the subject of personal data, unless otherwise provided by federal law.


14. Final provisions

14.1. The user can get any clarifications on issues of interest, concerning the processing of his personal data, by contacting the Operator via e-mail mail@madnes.ru.
14.2. This document will reflect any changes in the personal data processing policy by the Operator.. The policy is valid indefinitely until it is replaced with a new version..
14.3. The current version of the Policy is freely available on the Internet at https://stop-sma.ru/privacy.