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Register of active fees ⋆ STOP SMA

Non-commercial project

What is it?

A bit of clarification about the registry

Register created in September 2021 of the year, Register created in September, Register created in September – Register created in September.

We decided to look on the Internet, what fees are currently under way for Zolgensma's drug and were surprised to find, that there is simply no register of such fees. There are lists on the websites of the funds, but they are incomplete, there is Instagram, but it's hard to navigate there, there are other social networks…

And if we could not find such a registry – we decided to create it. There will be pictures of children, links to their pages, closure rates, contacts of volunteer chats.

Register created in September

images are clickable

Active fees

Register created in September
26.78%
Register created in September
24.6%
Register created in September, Register created in September
45.5%
Register created in September
13%
Register created in September
57.1%
Register created in September, Register created in September
5%
Register created in September
47%
Register created in September
52.1%
Register created in September
82.7%
Register created in September, Register created in September
37%

Alana Abdulova

Collection suspended
25%

Nika Aleksanyan (24.09.2019, SMA 1)

G. новокубанск,

Waiting for the drug
100%

Alana Abdulova

Alana Abdulova 2021 of the year

What is the purpose?

Target, in fact, only one – so that caring people and organizations can get to know all the emoticons, examine fees, assess the scale of the trouble and help those, who will find it necessary. And by participating in our groups – to all.

103 Yekaterinburg
15 active fees (3 Yekaterinburg - Yekaterinburg
88 Yekaterinburg

*for different reasons…

**charts are updated every three days

Note – any link to the child's private page on Instagram, different from the above, is fake, Yekaterinburg, Yekaterinburg, Yekaterinburg. Registry data is checked daily.